Tuesday, November 11, 2008

For Andy, Zaavan, and Tilly (forgive me if I have forgotten anyone)

A man sent me a book when we got the diagnosis on Andy, inside was a CD with this song on it. It really sums it up, I haven't heard it in about 6 years.

6 comments:

Erin said...

That's beautiful, Tyler. One of my best lifelong friends was pregnant and it was discovered her son had a genetic abnormality (DiGeorge's) in about her 20th week. She and her husband were told they had to choose. He would requite open heart surgery hours after birth and have various other things going on similar to Downs.

They chose to give him life. It hasn't been easy but they haven't regretted it.

(Oh and in case you wondered, I changed the size on the vid just a bit so it didn't carry over into the sidebar. Hope that's ok.)

Tyler Dawn said...

LOL, I didn't even notice but thank you for fixing it!

Yeah, I grew up with a girl who found out about eight years back that her baby would have anencephaly, no brain. They told her to abort, but she could not bear to take his life. She went through with the pregnancy, delivered by C-section and was able to hold that precious child for a few hours before he died. She has never once regretted it, but knows she would have regretted the abortion. There are millions of stories like this, it is amazing!

getting there said...

I didn't view the clip but just looking at the picture makes me emotional.. I cannot watch it. I just can't

lou said...

Thnx so much I cried alot-I dont regret having Tilly for a minute and she is our little miricle as she was toatlly unplanned. sTnx for reminding me of that

Tyler Dawn said...

I know Lou, it is a blessing but it is SO HARD, I understand about wanting to scream and pull hair out and just go postal. It is hard on us and it is hard on them.

Valorosa said...

My friend had a daughter who had metachromatic leukodystophy. She was seemingly normal until she was two then seemed to go backwards.
They were told that she would live until she was nine or ten.
But little Celina lived to 26.

Thanks for this video.