than being a special needs parent is not being one."
That has been my signature line as part of the Walt Disney World Special Needs visitor's forum for a couple of years now on a popular website.
While there I met a family about two years ago with a sick baby named Hayden who had a terminal prognosis. He was not supposed to live to his first birthday, but I was privileged to meet him at Mickey's Very Merry Christmas Party last year and gave him a kiss that I can quite literally still feel on my lips.
He died yesterday morning, and I feel as though my heart is smashed and broken in two. Please remember his parents Kyle and Eva in prayer, as they have lost their only child. We have all known this was coming for so long now, and I thought it would be easier, but I just find myself so steeped in grief.
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9 comments:
Oh, Tyler, that is so sad. My heart went out to his parents as I read this post. Knowing things are coming doesn't really make it any easier to handle, does it? ((Hug))
Tyler... {{HUG}} Sometimes the broken world just sucks.
I will definitely hold them in my heart. Like Sue said, knowing it's coming doesn't make it any easier. I think knowing it's coming only allows a person to fill in some of the things they would otherwise regret when their loved one is gone...but there will always be more things that didn't get said or done.
I'm with Katherine on this one sweetie. I am praying for this family.
Thanks, the one thing we have all been saying is that we thought it would be a relief but it isn't. There is no relief, there is nothing good here. Three year olds should not die. And although i know that he is a normal healthy boy now i am finding myself angry and enraged. I kissed his forehead and begged Abba to heal him, I begged for a miracle. My heart is just so broken.
It is too hard for us to understand why anyone's life is cut short before it even begins. Some babes never make it out of the womb.
Praying for you TD and for the parents ... makes it a lot more severe when you have known and kissed the sweet cheek of such a heavenly being.
I understand that rage when God won't heal or doesn't heal or whatever the bloody reason is that he doesn't, or does so rarely. I don't understand it and I think it's kinda right to get angry about that, isn't it? Because we know that he is love and he is life and yet so often he does not care to restore and yeah, blah blah blah we'll understand one day. I get that. I subscribe to it. I comfort myself with it. But it still doesn't stop the anger and rage any more than knowing he was going to die has brought relief.
Yes, Sue...you have written what I think.
TD, part of me struggles with death as I lost my mom at a young age and am still mad at God for that...no reason for it really. She wasn't sick...and I have no explanation. Yet, part of me wants so badly to be there with HIM, to leave this world that is sick in so many ways, that sometimes I look at death, even the death of a small innocent in a different light. I am a bunch of paradoxes I guess...
That being said, if it were my own child, I am not sure I would be able to cope at all...I just ache for these parents, and hope and pray that Abba will comfort them, will be able to show them in some way that their little boy really is in a better place, and to him it's not terrible...it's wonderful. I just pray for that relief to come. I am so sorry for your loss...
oh Tyler, I don't know what to say except I'm here, and I will pray for healing and comfort for you and everyone involved in this...love
Kari, thanks for sharing... You are his very own, of course you wanna be with him! I think how we view death changes a lot when you lose one or many loved ones... It's been changing for me. I don't know, I think it's healthy to want to go be with him, but still give our lives to whatever he has for us here one bit at a time... ( even in the face of all the unknowns)
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